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Implementation of Duchenne muscular dystrophy Care Guidelines at selected sites in the United States

June 20, 2018

Medical records data were used to identify areas in which practice aligns with the care considerations. However, there remains inconsistency across domains and insufficiency in critical areas. More research is needed to explain this variability and identify reliable methods to measure outcomes.

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Duchenne and Becker muscular dystrophy in adolescents: current perspectives

March 15, 2018

This review outlines the literature on DMD and BMD during adolescence, focusing on clinical presentation during adolescence, impact of living with a chronic illness on adolescents, and the effect that adolescents have on their chronic illness.

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Higher Cost of Hospitalizations for Non-cardiac Diagnoses in Adults with Congenital Heart Disease

Nov. 15, 2017

This review identified significantly increased hospitalization costs for adults with moderate and high severity CHD who are admitted for non-cardiac medical conditions not associated with concomitant cardiac surgical procedures. Admissions with CHD diagnoses had higher ICU admission rates, longer lengths of stay, and higher mortality for most non-cardiac admission diagnoses. These data will add to our understanding of the economic impact of adults with CHD.

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